2

3/25/2009 2:30:37 AM

Gluten is a minor concern at this point. Don't make me post pictures.

3/25/2009 2:45:12 AM

yeah please don't.

3/25/2009 2:46:51 AM

lol what are the pictures of?

3/25/2009 2:49:08 AM

Quote :

"whoa whoa whoa, I'm no slacker. My best friend has an autoimmune disease. I wash my hands like 20 times a day and carry hand sanitizer in my pocket. Haven't been sick in a GOOD long while. Something about a weekend in NYC followed by 5 hours of sleep in 3 days wore me slap out."

Then I wasn't talking about you
krs3g's boss? Yes.

Quote :

"Some folks get one sniffle and think they're sick so that's what they tell people when they're not sick by your standards. Some people do have poor hand washing habits and whatnot. Some people work in environments where they are exposed to an especially large amounts of germs. And some people have weaker, less developed immune systems."

I'm not talking about the first or last group.

Quote :

"Regardless, you are really, really reaching here. Are you seriously so desperate to judge people that you're criticizing them for getting sick? I mean, this shit's practically pathological."

As always, bridget, you are so right! I can hardly believe how intuitive you are

Quote :

"i get sick because motherfuckers wash their hands too fuckin much and i catch your resistant fuckin pathogens "

Their supergerms aren't from too much handwashing; it's from too much "antibacterial" crap in soaps and hand sanitizers, like triclosan and such.

3/25/2009 10:44:25 AM

what about people with autoimmune diseases?

3/25/2009 10:54:33 AM

clearly, they're to blame for constantly being ill or at risk

3/25/2009 10:59:04 AM

Quote :

"1) you have a genuine concern 2) you probably are proactive about keeping from getting sick"

yes, and yeah i go around with lysol wipes and clean door handles, light switches, cabinet pulls, etc...and thankfully people have started actually covering their mouths when they cough/sneeze, washing hands, etc since they know i catch stuff easily

Quote :

"what about people with autoimmune diseases?"

i'm going to go with the fact that you don't understand autoimmune rather than you're just being an ass. people with autoimmune diseases have lowered immunity and typically catch viruses, bacteria, any other infectious agent much easier than normal healthy people. when someone with an AI gets sick, they are typically hit harder and it takes much longer to recover. that's the simple explanation.

i have 2 (myasthenia gravis and sjogren's), possibly a 3rd that we haven't figured out yet, or it could be lyme disease. feel free to look those up. i also have seronegative arthritis, which may be caused by the sjogrens or may be the 3rd mystery disease.

i'm gonna end up on that mystery diagnosis show one day. my myasthenia dr, dr. james howard at unc, was on there once actually.

[Edited on March 25, 2009 at 11:16 AM. Reason : ]

3/25/2009 11:00:15 AM

If you kill 99.9% of the germs on an unsterile surface, guess what you're left with? The .1% of the germs that were unaffected by the sterilizer will now have unlimited room to multiply, which is why sanitizing everything around you is stupid.

do what a previous poster said and drink plenty of water, get rest, eat healthy, moderate exercise. The human body is extraordinary when it comes to resisting outside contamination, your lifestyle habits are what gets you immunocompromised

3/25/2009 11:15:17 AM

you're full of shit and have no clue what you're talking about. i never worried about germs before getting myasthenia. i never sterilized shit before then. in fact i am still a big supporter of letting your kids eat dirt and be exposed, i just can't do it anymore.

eating well, drinking water, and exercising will not fix myasthenia, sjogrens, arthritis, or any other AI condition.

i technically still have myasthenia, although it only affects me when i am sick, but i had my thymus gland removed in 2005 (i now have normal energy levels). it was over 25cm long and 11cm wide. it's supposed to be next to nothing. no amount of exercise and vegetables will fix that.

[Edited on March 25, 2009 at 11:20 AM. Reason : ]

3/25/2009 11:18:10 AM

you're full of shit and I have fancy names for the fact that I'm a pussy and can't sneeve without wiping all around me with lysol wipes and complaining about motherfucking lyme disease even though it's 2009. You're one of these ninny fag men that the modern world produces now that wouldn't last a fucking day in the outdoors

3/25/2009 11:19:50 AM

i'm not a man you idiot.

you're just trying to troll, but you're making yourself look really stupid.

what in the world does 2009 have to do with lyme disease?

[Edited on March 25, 2009 at 11:21 AM. Reason : ]

3/25/2009 11:21:06 AM

Quote :

"you're full of shit and I have fancy names for the fact that I'm a pussy and can't sneeve without wiping all around me with lysol wipes and complaining about motherfucking lyme disease even though it's 2009. You're one of these ninny fag men that the modern world produces now that wouldn't last a fucking day in the outdoors "

I doubt i'll read anything dumber than this any time soon

3/25/2009 11:25:11 AM

Quote :

"I doubt i'll read anything dumber than this any time soon"

Review your own posts, they're rarely above the level of retarded

3/25/2009 11:27:11 AM

Quote :

"i have 2 (myasthenia gravis and sjogren's), possibly a 3rd that we haven't figured out yet, or it could be lyme disease."

so, either way, you´re just fucked

3/25/2009 11:30:54 AM

oh and just for the record, in addition the fact that i am female, my main activities are kayaking, fishing, canoeing, camping, and hiking. also the occasional mtn biking and running. i'm going to glacier national park for our honeymoon in june. excited!!!

Quote :

"so, either way, you´re just fucked"

haha yeah. well i don't have severe symptoms of most of it thankfully. it doesn't limit my daily life and i can effectively manage the symptoms with occasional OTC meds. i'm still seeing doctors just to figure out what it is, give it a name, although that won't change any treatment.

[Edited on March 25, 2009 at 11:33 AM. Reason : ]

3/25/2009 11:31:15 AM

very well then

carry on

[Edited on March 25, 2009 at 11:33 AM. Reason : hopefully you see more animals at glacier than i did ]

3/25/2009 11:33:09 AM

Quote :

"Their supergerms aren't from too much handwashing; it's from too much "antibacterial" crap in soaps and hand sanitizers, like triclosan and such."

well then washing your hands more is even more of a factor

increase the dose, decrease the amount of use

Quote :

"If you kill 99.9% of the germs on an unsterile surface, guess what you're left with? The .1% of the germs that were unaffected by the sterilizer will now have unlimited room to multiply, which is why sanitizing everything around you is stupid. do what a previous poster said and drink plenty of water, get rest, eat healthy, moderate exercise. The human body is extraordinary when it comes to resisting outside contamination, your lifestyle habits are what gets you immunocompromised"

good post, people think we need a bunch of chemical assitance to resist inoculation, yet hate pesticides and other forms of chemical resistance in other facets of life

its stupid

[Edited on March 25, 2009 at 11:36 AM. Reason : e]

3/25/2009 11:34:20 AM

Quote :

"i'm going to glacier national park for our honeymoon in june. excited!!! "

I'm going in July

Quote :

"increase the dose, decrease the amount of use"

No.
You might be one of them - those who fail to realize that soap alone is enough to kill bacteria and viruses. Triclosan and others aren't necessary at all. Plain soap breaks them down. Triclosan and other antibacterials aren't very effective (worthless, even?) against viruses.

Don't increase the dose. Eliminate it completely.

[Edited on March 25, 2009 at 11:43 AM. Reason : df]

3/25/2009 11:40:16 AM

Kid + kid in school + it is implied that you're older now because you have a kid that is of school age = sick more often.

3/25/2009 12:03:01 PM

se7entythree, I'll PM you about the lyme stuff. Have you had Igenex test you yet?

3/25/2009 1:10:31 PM

no, mom and i just yesterday discovered it could be lyme disease (thanks to your thread in the lounge about gluten-free diets). i haven't found any other condition that contains ALL of my symptoms, which all started at the same time. the next dr appt i have (w/ a gastrointerologist whom i haven't met yet, referred by my rheumatologist), which is apr 21, i'm going to ask him what he thinks. then i'll probably make another appt w/ my regular doc.

[Edited on March 25, 2009 at 1:12 PM. Reason : mom is a nurse]

3/25/2009 1:12:38 PM

I was reading an article on MRS.... some staph infection that doesn't respond well to antibiotics, in fact those antibiotics only keep the bacteria from growing and does not kill it so one will need to live life taking these drugs forever.

Anyway, it mentioned that it's best to treat the staph infection with little antibiotic as possible, that people seemed to heal just fine with continuous draining of the infection site. The reason for this was that antibiotics pretty much kill a wide variety of bacteria flora in your body leaving ample room for this staph infection to grow once the antibiotic's dosage was lowered.

Pretty interesting stuff if you ask me...


I've not been seriously sick for years and I don't believe in the overabundance of antibacterials and shit. I don't take drugs at the first sign of an illness... and I've done just fine, it's pretty amazing what the immune system can handle all on its own...

3/25/2009 1:20:05 PM

Ok, I'll send you more info later.

Definitely have the Igenex western blot done, you can call now and have the test kit in hand for your appointment. It's out of network and $200 to $300, but the ELISA most docs use to will miss about 40% of cases (including mine)

Most docs are really bad at treating late lyme (neuroborreliosis) so I'm thinking about heading to an in-network doctor in the Boston area. Cheaper than the out of network guy in SC by far.

3/25/2009 1:30:18 PM

3/25/2009 1:35:45 PM

Quote :

"Arguably the most overlooked and misdiagnosed ailment currently verging on epidemic throughout the United States, Lyme disease and the controversies surrounding its identification and treatment are the focus of this documentary."

[Edited on March 25, 2009 at 1:58 PM. Reason : quote]

3/25/2009 1:52:07 PM

i'm not really interested in spending that kind of money before i even mention it to a doc. i'll see what he says. i've never met him so i dont know how responsive he is to patient input. lol

is it out of network for everybody everywhere?

3/25/2009 1:59:13 PM

Yes, they don't participate in any insurance.

You can skip the IFA and get the two blots for $190, and you get paperwork to submit it to your insurance so you can get reimbursed for some of it. If you think you have late lyme you really need a blot to be sure, and Igenex is the only lab that reports on the band that was used for the lyme vaccine. If you haven't had the vaccine it's a very lyme specific protein that really should be reported, but is not because it was in the vaccine. Annoying. It's expensive, but having been misdiagnosed and shuffled from doctor to doc for years I can promise it's a lot cheaper to know for sure than get the wrong treatment. I have had multiple ELISAs which was negative and kept me from getting the blot done sooner. The whole time it was known that I responded to doxycycline, and we had no idea why because everyone "thought" I was lyme negative until all the other treatments failed and I paid for the blot out of desperation (and had spoken with several people that convinced me I could actually have lyme, then read the journal articles about the inaccuracy of the ELISA in late lyme).

Anyways, I am one of the cheapest bastards alive and it was some of the best money I ever spent. I'm the kind of person that buys reduced for quick sale meat and veggies and keeps the apartment at 65 in the winter to save money. It's also important to know if you have an autoimmune disease vs. infection so you can make sure to take the right meds and supplements. Pred. is common for autoimmune disease but a huge no-no if you have a chronic infection. I can suggest a couple of immune stimulating supplements and vitamins and minerals that are commonly depleted in lyme patients as well.

3/25/2009 2:14:10 PM

lewoods

3/25/2009 2:14:30 PM

i'm not taking any long term steroids unless i'm completely debilitated. the side effects are way not worth it imo.

i would like to match a name to what i have, but there would be a line b/w money and satisfying my curiosity, b/c i really don't think my treatment/medicines/etc would change. i would maybe take a round of antibiotics if they thought it would help, but no big time meds. i take normal vitamins and no weird ass herbs (except for green tea, which isn't weird imo). i take flax oil supplements and folic acid too. i try to really only take aleve (naproxen is the only otc one that works for me) when i really really can't function w/ the pain. i have a prescrip for celebrex, which works REALLY well, but i try to take that even less. the only thing i've tried to cut back on and can't really is loperamide, but i feel like that's fairly safe.

like i said, i don't take a serious hit b/c of this in my daily life. i mean yeah it's annoying sometimes but i can tolerate [joint] pain, as long as it's not a headache. i have flare-ups when it's much worse and that's when i really want to find out what it is. myasthenia is what really put me down and out, and i feel like as long as i'm not as restricted now as i was then, i'm doing okay.

3/25/2009 2:28:26 PM

Muscle pain and weakness can be caused by lyme. I have very little joint pain, it's mostly fatigue, neuro symptoms, and muscle weakness and soreness. The soreness and weakness combined with the balance issues can make riding the motorcycle a bitch though.

3/25/2009 2:33:19 PM

i don't/didn't have muscle pain. i had very classic/characteristic myasthenic muscle weakness (only specific ones at specific times). i always tested borderline for MG in blood and EMG tests. when they removed my thymus gland it was 100million% obvious then.

my main complaints now are joint pain & swelling, knees most frequently, long w/ my stomach problems. i have some other symptoms i'm not going to discuss openly here. i only show signs of MG when i'm sick w/ a cold.

3/25/2009 2:37:36 PM

Everyone knows that my son has a primary immune deficiency. We've learned a lot about staying well over the past year.

The big things are hand washing and avoiding physical contact. Hand washing with soap and water. Hand sanitizer when we can't get to a sink. No shaking hands. No hugs.

It works. I went from being sick every other month to coming down with something only once in the last 14 months. And I spend 80 percent of my time in and out of the hospital and doctor's offices. I think that's pretty darned good.

3/25/2009 2:43:12 PM